tag:blogger.com,1999:blog-5153464275227247642.post9172735677885768687..comments2023-10-28T06:38:49.989-05:00Comments on Team Jaylie: A Little TiredKajsahttp://www.blogger.com/profile/02691032535800961190noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-5153464275227247642.post-63234778612992699182011-09-03T15:59:19.830-05:002011-09-03T15:59:19.830-05:00So sorry you are going through this Kajsa, I have ...So sorry you are going through this Kajsa, I have thought of you several times today, and have spent hours reading the blog since Katherine sent me your link months ago. I know it is so hard. Our little boy Joren has ALL (leukemia, most common type) and is in his 3rd year of treatment. You'd never know it now though, we only had 3 courses of the heavy duty stuff over the 1st 8 months. After that his hair grew back, his energy returned in full and he doesn't mind at all the weekly blood checks via his port, his monthly vincristine and 5 day course of dexamethasone (steroid), nor his nightly mercaptopurine, weekly methotrexate (tiny yellow pills we have to dissolve in liquid, and the yuckiest medicine) or his weekend antibiotics. It sounds like a lot to some but once you get through the first 8 months with ALL it is really smooth, we rarely get fevers and have to go in and stay for IV antibiotics now, but I know how much it wears on you. His 12 weekly lumbar puncture and chemo this last week really was tough for me (I'm pregnant with number 3 and couldn't eat as he had to fast, and of course you get extra emotional and less patient with the 4 hour wait). It really has a cumulative effect over time. We have a friend in Houston whose son had a wilms tumor and one kidney removed in march and just finished his chemo in time to start kindergarten. I don't know if it helps to know you are not alone going though this, there are so many of us experiencing it to different degrees, and I pray for you for the strength you need to get through it and for Jaylie's body the strength to fight it. The nice thing about the other children being younger is that they won't really remember that you weren't around as much as normal. They will just know they were surrounded by people that loved them the whole time. Anyway, i doubt you even remember meeting me at A&M but we send you all lots of love at this difficult time. xx Chris and Alisha Davis, Brooklyn & JorenAlishahttps://www.blogger.com/profile/10937178704436542851noreply@blogger.comtag:blogger.com,1999:blog-5153464275227247642.post-9398126027015330192011-08-31T00:14:45.200-05:002011-08-31T00:14:45.200-05:00Jaylie looks so beautiful in this picture. It'...Jaylie looks so beautiful in this picture. It's still seems like a dream our sweet niece is battling cancer. I never could've imagined what she would be up against just a few short months ago when we celebrated Christmas together. Our heart aches to be so far away, and wish we could help lift your burdens more than we're able to. You have done incredible through all of this, and I believe Jaylie will beat this! We love her and your family so much. Just know through good and bad days you are loved:)Ashley and Codyhttps://www.blogger.com/profile/16128944783115336625noreply@blogger.comtag:blogger.com,1999:blog-5153464275227247642.post-912779482977493542011-08-28T22:52:16.548-05:002011-08-28T22:52:16.548-05:00I love you.
I love that we got to see you guys for...I love you.<br />I love that we got to see you guys for a minute today.<br />I love your family.<br />And, I love that we get to be friends. It's just really good being around you guys. <br /><br />It IS crazy that you are living life in a totally different world now. I can only imagine what it must have done to your heart looking through all those old photos. <br /><br />It makes me bawl just thinking of it. <br /><br />I have no words of advice or big Ra-ra-Raa's of encouragement----just sending my love to you. <br /><br />And, as always, sending our prayers to Heavenly Father for that little miracle named Jaylie and her amazing family that we are so lucky to know. <br /><br />Lots and lots of love.<br />melismelimbahttps://www.blogger.com/profile/13933896899999395418noreply@blogger.com