Wednesday, November 21, 2012

Jaylie Update

The pathologist here in Austin gave us his final report on the chunk of bone they took from Jaylie's skull. It was just abnormal cells that were benign, not cancerous and it looked like dysplastic bone. The only treatment needed for it was surgery to get it all out. Nothing after that. We are so grateful! They still sent it off to Mayo clinic, they are the top bone pathologists, but I'm sure they will find it to be the same. We should hear back from them in a week or two. 

Jaylie is doing great! She only needed pain medicine for 24 hours after the surgery. She didn't even want normal Tylenol after that. I kept thinking she needed it and she said she didn't want it. She is such a trooper and never complains. She amazes me. She was up running and dancing around 24 afters afterward too. So thankful it was just a bone surgery, not a brain surgery, its so much easier to recover from.

We are so happy and relieved and so grateful for our many blessings from our loving Heavenly Father. In the 2 short weeks (felt like forever for us) that we were unsure if Jaylie had cancer or not again, we saw so many blessings, it was amazing. Dinners, gifts, freezer meals, cards left in the door, texts, messages etc., it meant so much to us and most importantly let us know that God was aware of us and our struggles. It totally brought me back in time to last year when so many helped us during that hard time. Those feelings of being overwhelmingly grateful for all those who helped us during the hard time with Jaylie all came flooding back and I found myself crying a lot because I was so touched. We are so thankful.  There are so many good people in this world.

We were so glad the day we found out it was not cancer, but it was hard to be completely happy because of the other little cancer warriors out there who are not getting good news.  It breaks our hearts seeing the other children struggle and their parents too, especially ones we know. Please keep Hayden and her family in your prayers. She is such a cute and amazing little girl and she was the first "brain tumor child" besides Jaylie we had ever met. Her and her family hold a special place in my heart and it breaks my heart that they are having to go through this. She had to have surgery on her birthday, poor thing. It is a whole different world that we are a part of now, we think of and feel for the other families so much.

This is what our friend, Rachael (Hayden's mom), wrote for her last post:

I don't even know how to write this update. We are going home tomorrow but not how I ever imagined. We are being released with hospice care.
The pathology from Hayden's recent surgery came back as cancer. Her entire left lung and chest cavity is full of cancer that we had no idea was growing.
I have no words right now, just wanted to update.

For more updates on Hayden go to

and like her page. The more support they have the better. If you have time to leave them a message, I'm sure they would appreciate it.
This is Jaylie and Hayden at the hospital a month or so ago

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