Thursday, December 19, 2013

Surgery and Pathology Results

Just realized I didn't update this after Jaylie's surgery. They pushed back her surgery a week due to a machine being broken that her surgeon needed. So her surgery ended up being the day after Crews surgery. It was crazy! We are so thankful for all the help we received with babysitting, meals, etc. We appreciate it! Crew had his tonsils and adnoids out and an umbilical hernia repaired. They said his tonsils and adnoids were so big and were blocking his whole airway! He had a rough week but wasn't as bad as I was thinking it was going to be. He still hurts and is fussy and is hard at night. Hopefully he will be all healed soon. Jaylie's surgery went well, she got really sick afterward and threw up right when we walked in the house, everywhere! Poor girl. She did pretty good though and isn't hurting anymore. She bounces back fast. We got the biopsy results on Tuesday and it is the same thing as last time when she had a spot a year ago. No cancer! I was worried because after the surgery her surgeon told me that it didn't look anything like her other spot. So we are so grateful! They don't know what it is really, pathology was stumped by it and studied it over and over before they named it. Her oncologist even told us that they will probably publish a study about it because it is not normal and they have not found anyone else that has had those spots on their skull bone. Their best guess is that its from radiation damage, but they really have no clue. We just hope she doesn't have any more spots or surgeries.  We are so grateful to have her here with us. Thank you for your . !
If you want to hear more updates, like her facebook page at
I update that a lot more :)

Sleeping after surgery

First food item after surgery. He hated the iv in his arm and tryed ripping it out several times when he first woke up. He was so mad! He was hitting and kicking and screaming. Luckily he calmed down and was pretty good after that.

Got sick from the steroids and threw up :(

Being silly with pudding in his mouth :)

Getting warm in her warmer blanket before surgery. She likes these things!

I asked her for a smile after surgery and this is what she gave me :)

She got so sick on the way home. It reminded me so much of when she was on chemo. She was so white and was holding a ziploc up to her mouth the whole way home. Gallon sized ziplocs are so nice for throwing up.

Surgery site

This one is only like a half inch long luckily. The other ones from last time were quite big.

After we got the good news that it wasn't cancer, Jaylie and Crew painted, did crafts, ate Amy's ice cream (Amy's supplies the clinic with little things of ice cream) and got hand massages by a volunteer there. They loved it!
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