Jaylie has been doing really good today. We first went to the cancer center and got poked and got blood work done. A couple clowns were there from the Circus that is going on this weekend and they did a little show for the kids. Jaylie loved it. They gave them some goodies afterwards too and she got a bead to add to her beads of courage necklace. There is a little video that she is in a little bit on kvue.
Here is the link.
The cancer center and this hospital are wonderful. They always have fun things going on for the kids. It realy helps to make it more fun for them. We had to wait around the cancer clinic for a little bit while they were putting our orders in to transfer over to the hospital. Jaylie made a lot of crafts while we were waiting and we met another little 5 year old girl there that has leukemia. They live in our same town so it was fun talking with her. Its always nice talking with other parents whose has or has had a child with cancer because they know exactly how it is. I feel so much for everyone else who has to go through this. It makes my heart ache so much.
We got into our room on 4th North and got fluids started around 3ish. They are giving her chemo, all her fluids, and doing bloodwork all from her port. It was accessed at the cancer center and has a tube hanging from it that they hook everything up to. It is so much nicer than having a bunch of iv's in her arms. They have to get her levels just right before they can give the chemo, so they did fluids in her iv for 2 1/2 hours before starting the actual chemo. We have to monitor what goes in and out the whole time we are here. With this chemo medicine she doing right now (cisplatin), she has to be peeing every 2 hours. This will be a long night because we have to wake her up every 2 hours and make her go. They have to do vitals every 4 hours too. Hopefully she will get some rest. Jaylie's doctors and nurses said all kids react differently on chemo and all the chemo meds are different. I never realized how different chemo can be for everyone and how many different chemo meds there are. Some kids get nauseous and throw up a lot, some a little, some not at all. I didn't know what to expect. They started it at 6 and she has been fine so far. No complaining at all and she ate a lot for dinner, which was awesome. I hope she keeps it up and does well for the whole thing. Before they even give the chemo they put zofran in the iv and keep zofran in her the whole time in the hospital. If that doesn't work well, they have other things they can try to. She is doing great though. She is watching a show right now and then we are going to try and get some sleep.
Jaylie with her pole she has to carry around that has her iv meds/fluids on it.
Crafts and painting she did at the cancer center today.